{"id":1811,"date":"2026-01-06T01:13:50","date_gmt":"2026-01-06T01:13:50","guid":{"rendered":"https:\/\/topshowusa.us\/?p=1811"},"modified":"2026-01-06T01:13:50","modified_gmt":"2026-01-06T01:13:50","slug":"heartbreak-beyond-wordsmy-worst-nightmare-jesy-nelson-breaks-down-as-doctors-deliver-devastating-verdict-on-her-twin-babies-fans-rally-around-devastated","status":"publish","type":"post","link":"https:\/\/topshowusa.us\/?p=1811","title":{"rendered":"\u201cHEARTBREAK BEYOND WORDS:\u201c\u2018My Worst Nightmare\u2019: Jesy Nelson breaks down as doctors deliver devastating verdict on her twin babies \u2014 fans rally around devastated mum\u201d"},"content":{"rendered":"

Jesy Nelson told her twin babies will never walk after devastating diagnosis<\/h1>\n

Jesy Nelson has revealed her twin girls, who were born prematurely in May, have been diagnosed with rare genetic condition Spinal Muscular Atrophy (SMA) that causes weakness in the muscles<\/h2>\n

Jesy Nelson reveals devastating diagnosis with her twin babies.<\/span><\/p>\n

Jesy Nelson\u00a0has shared the heartbreaking news that her eight month old twin girls have been diagnosed with rare genetic condition\u00a0Spinal Muscular Atrophy, and may never walk. The 34-year-old singer and her musician fianc\u00e9 Zion Foster, 27, welcomed twins Ocean Jade and Story Monroe Nelson-Foster in May.<\/p>\n

Today the\u00a0Little Mix\u00a0star shared a video to\u00a0Instagram\u00a0that saw her pause to stop herself from crying multiple times as she said: \u201cI am grieving a life I thought I was going to have with my children.\u201d<\/p>\n

SMA weakens every muscle in the body and leads to symptoms like floppiness, difficulty breathing and swallowing as well as delayed motor skills. Jesy said she is now acting as a full-time nurse to her girls and has had to do \u2018things no mother should.\u2019<\/p>\n

The singer first went to her GP after her mum noticed the twins were not moving as much as they should be for their age. Having been advised that the babies will show slower development as they were premature, Jesy said she told herself not to \u201ccompare them\u201d to other babies of the same age. After pushing for answers, Jesy\u2019s twins were diagnosed with SMA Type 1.<\/p>\n

Sharing the news on Instagram, Jesy said: \u201cI wanted to come on here to share some news with you guys. I\u2019m not actually sure where to start with this video.<\/p>\n

\u201cA few months ago my mum noticed that the girls were not showing as much movement in their legs as they should be.<\/p>\n

\"\"
\nThe singer welcomed twins Ocean Jade and Story Monroe Nelson-Foster in May<\/span><\/p>\n

\"Jesy
\nJesy Nelson, pictured with partner Zion Foster, said she\u2019s hoping her girls can defy all the odds<\/span>
\n\u201cIt wasn\u2019t really a concern to me at the time,\u201d said Jesy. \u201cFrom the minute I left NICU I was told, \u2018Your babies are premature so don\u2019t compare your babies to other babies. They won\u2019t reach the same milestones just take them as they are.\u2019<\/p>\n

\u201cIt didn\u2019t really ring alarm bells to me. They are my first set of children and I was told not to compare to them. Health care visitors insisted everything was fine and the girls were healthy.<\/p>\n

\u201cThere were a few signs later on that the girls were struggling to feed properly. We would take them to the GP and say \u2018Our babies are not feeding as frequently as they should.\u2019 They said it was fine and to try little and often.\u201d<\/p>\n

Jesy went on: \u201cLong story short, after the most gruelling three to four months and endless appointments, the girls have been diagnosed with a severe disease called SMA Type One. It stands for Spinal Muscle Atrophy which affects every muscle in the body from legs, arms, swallowing.<\/p>\n

\u201cOver time it kills the muscles in the body. If it\u2019s not treated in time, your baby\u2019s life expectancy will not make it past the age of two<\/p>\n

\"Jesy
\nJesy Nelson shared the girls\u2019 diagnosis in a heartbreaking Instagram video<\/span><\/p>\n

\"The
\nThe emotional star struggled to speak as she explained the diagnosis<\/span>
\n\u201cOnce the girls got treated it was a very rapid process, time is of the essence with this disease,\u201d said Jesy.<\/p>\n

\u201cWhen they assessed the girls at Great Ormond Street, we were told they were never going to be able to walk. They would probably never regain their neck strength. They will be disabled.<\/p>\n

\u201cThe best thing we can do right now is to get them treatment and hope for the best,\u201d she added. \u201cThankfully the girls have had their treatment which I\u2019m so grateful for. If they didn\u2019t have it they would die.\u201d<\/p>\n

There is currently no cure for (SMA), but there are treatments and support available to help people have the best possible quality of life.<\/p>\n

Explaining how her life has been turned upside down in the last four months, Jesy said: \u201cI am grieving a life I thought I was going to have with my children.<\/p>\n

\u201cThe hospital has become my second home. I feel like I\u2019ve had to become a nurse within two weeks of getting the diagnosis. I\u2019ve had to do stuff no mother should have to do to their child.<\/p>\n

\"Jesy
\nJesy Nelson and Zion Foster went on This Morning with their girls when they were a few weeks old<\/span>\u00a0(\u00a0<\/span>
\nImage:
\nITV)<\/span>
\n\u201cI made this video because the last three months have been the most heartbreaking time of my life.\u201d<\/p>\n

Breaking down in tears, Jesy said: \u201cI know I have to be grateful. At the end of the day they are still here and that\u2019s the main thing. They\u2019ve had their treatment. I truly believe that my girls will defy the all the orders and with the right help they will fight this.\u201d<\/p>\n

After posting her brave video, a number of celebrities reached out with supportive messages. Jesy\u2019s ex partner Chris Hughes shared: \u201cA warrior Jess. Be easy on yourself. Sending prayers to you all, everyone is behind you guys.\u201d<\/p>\n

Love Island\u2019s Shaughna Phillips told the new mum: \u201cSending you and your girls so much love and positive prayers, you are a superwoman and they are lucky to have you.\u201d Towie star Jess Wright said she was \u201cSending you so much love and strength\u201d with co-star Amy Childs adding: \u201cI\u2019m so sorry Jesy what your going through x sending love and strength to you and your beautiful girls xxx\u201d<\/p>\n

Jesy endured a complicated\u00a0pregnancy\u00a0which saw her undergo surgery after her girls diagnosed with twin-to-twin transfusion syndrome (TTTS).<\/p>\n

\"\"
\nJesy Nelson\u2019s twins Ocean Jade and Story Monroe Nelson-Foster<\/span><\/p>\n

\"Jesy
\nJesy endured a complicated pregnancy and had to undergo emergency surgery and spent weeks in hospital<\/span>
\nAccording to the\u00a0NHS, TTTS affects 10 to 15% of identical twins who share a placenta and \u201ccan have serious consequences\u201d.<\/p>\n

The condition is caused by abnormal connecting blood vessels in the placenta which leads to an imbalanced blood flow from one twin to the other, leaving one with a greater blood volume than the other.<\/p>\n

The singer underwent the emergency procedure and spent 10 weeks in hospital before giving birth to the twins prematurely at 31 weeks on May 15.<\/p>\n

During her pregnancy, Jesy had also shared that her twins were monochorionic diamniotic (MCDA), meaning they share a single placenta but have their own separate sacs.<\/p>\n

\"\"
\nJesy shared pictures of her girls in June saying \u201cIHave never ever felt more lucky and blessed in my whole entire life\u201d<\/span><\/p>\n

\"\"
\nJesy said her girls were fighters and she knew they\u2019d do what they could to fight the odds<\/span>
\nJesy\u2019s news comes after she revealed she had filmed a six part documentary about her pregnancy and what she described as a \u201cnew chapter in her life\u201d.<\/p>\n

Jesy and Zion documented the highs and lows of their difficult nine months for a series with Amazon Prime.<\/p>\n

Sharing the news on her Instagram, Jesy said: \u201cI feel so excited and proud that we can finally reveal we have been filming our own series for Amazon! Letting the cameras in wasn\u2019t an easy decision for us as it\u2019s such a deeply personal time but I knew I wanted to tell my story in my own words. We opened the doors fully and I\u2019m really looking forward to letting you all in as I navigate my way to becoming a first time mum to our beautiful baby girls Ocean and Story.<\/p>\n

\u201cI\u2019ll be honest, it\u2019s not been easy as it\u2019s been such a high risk pregnancy, so you\u2019ll see all the highs and lows and rollercoaster of emotions we have been going through. I hope you will all join me on this journey as I really open up and say goodbye to the past and enter this new chapter in my life. I hope you love it as much as we do\u201d<\/p>\n

Speaking before the twins were born, Zion told the Mirror that the turbulent pregnancy had brought him and Jesy closer together.<\/p>\n

He explained: \u201cWe\u2019ve literally grown to understand each other on a deeper level. And I think we really understand how much we actually care about each other.<\/p>\n

\u201cI think it\u2019s at these times when you really, really know what love you have and what your relationship means.<\/p>\n

\u201cAnd I think for me and Jess, this has just taken it to a whole other level of us knowing we are literally made for each other.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"

Jesy Nelson told her twin babies will never walk after devastating diagnosis Jesy Nelson has revealed her twin girls, who were born prematurely in May, have been diagnosed with rare … <\/p>\n","protected":false},"author":1,"featured_media":1812,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9,8,11],"tags":[12,15,26],"class_list":["post-1811","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-story","category-talents","tag-news","tag-people","tag-story"],"_links":{"self":[{"href":"https:\/\/topshowusa.us\/index.php?rest_route=\/wp\/v2\/posts\/1811","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/topshowusa.us\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/topshowusa.us\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/topshowusa.us\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/topshowusa.us\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1811"}],"version-history":[{"count":1,"href":"https:\/\/topshowusa.us\/index.php?rest_route=\/wp\/v2\/posts\/1811\/revisions"}],"predecessor-version":[{"id":1813,"href":"https:\/\/topshowusa.us\/index.php?rest_route=\/wp\/v2\/posts\/1811\/revisions\/1813"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/topshowusa.us\/index.php?rest_route=\/wp\/v2\/media\/1812"}],"wp:attachment":[{"href":"https:\/\/topshowusa.us\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1811"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/topshowusa.us\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1811"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/topshowusa.us\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1811"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}